Facing Autism in New Brunswick: Autism Disorder AND Epilepsy (But NO SUDEP!!!) at 6:05 AM

I was awake at 5:30 this morning, had some breakfast, and was enjoying a mug (not a cup, a mug) of coffee when I noticed that the time was 6:05 am.  Startled I jumped up to see if everything was OK with my son Conor.  Conor suffers from severe autism disorder and epileptic seizures, including ...

Facing Autism in New Brunswick: Autism Disorder AND Epilepsy (But NO SUDEP!!!) at 6:05 AM

I was awake at 5:30 this morning, had some breakfast, and was enjoying a mug (not a cup, a mug) of coffee when I noticed that the time was 6:05 am.  Startled I jumped up to see if everything was OK with my son Conor.  Conor suffers from severe autism disorder and epileptic seizures, including ...

Facing Autism in New Brunswick: Autism Disorder AND Epilepsy (But NO SUDEP!!!) at 6:05 AM

I was awake at 5:30 this morning, had some breakfast, and was enjoying a mug (not a cup, a mug) of coffee when I noticed that the time was 6:05 am.  Startled I jumped up to see if everything was OK with my son Conor.  Conor suffers from severe autism disorder and epileptic seizures, including ...

Facing Autism in New Brunswick: Autism, Seizures, Meltdown, Recovery:What a Difference a Day Makes

A day can make a big difference in my son’s world of severe autism disorder, intellectual disability and epileptic seizures. Yesterday as I pulled up to his school to pick him up at the end of the day I could hear his voice inside the school and I knew things were not going well. He ...

Facing Autism in New Brunswick: Autism, Seizures, Meltdown, Recovery:What a Difference a Day Makes

A day can make a big difference in my son’s world of severe autism disorder, intellectual disability and epileptic seizures. Yesterday as I pulled up to his school to pick him up at the end of the day I could hear his voice inside the school and I knew things were not going well. He ...

Facing Autism in New Brunswick: Autism, Seizures, Meltdown, Recovery:What a Difference a Day Makes

A day can make a big difference in my son’s world of severe autism disorder, intellectual disability and epileptic seizures. Yesterday as I pulled up to his school to pick him up at the end of the day I could hear his voice inside the school and I knew things were not going well. He ...

Facing Autism in New Brunswick: Autism, Intellectual Disability and Seizures, When Together, Constitute ONE DISORDER

In the picture above, taken 3 years ago my son erupted in sudden self injurious behavior smashing himself violently in the head a split second after he had been on the swing at his old grade school, Nashwaaksis Memorial School; a split second after he had been very smiling and happy. I captured the image ...

Facing Autism in New Brunswick: Run Jump Fly Boy Will Soon Return

With the return of Spring after a tough winter will come lots of  outdoor time on our trails in the beautiful City of Fredericton with Conor. .Autism, seizures, seizure meds, reactions to seizure meds and this unusually tough winter will give way to spring and the Return of the Run Jump Fly Boy:

Facing Autism in New Brunswick: Autism Disorders and the 1st International Epilepsy Day, February 9, 2015

Monday, February 9, 2015 is the first International Epilepsy Day,   a joint initiative created by the International Bureau for Epilepsy (IBE) and the International League Against Epilepsy (ILAE)  scheduled to occur annually hereafter on the second Monday in February to promote epilepsy awareness around the world.   Epileptic seizures are much more common among persons ...

Facing Autism in New Brunswick: Our Happy Conor is Back! And Dad Is Happy Too!

The top photo above was taken a year and a half ago,  shortly after Conor recoved from a very serious adverse reaction to his seizure med at the time, Lamtrogine, which resulted in two weeks in the hospital including an emergency room visit and 6 days in the ICU where the excellent medical team there, ...

Facing Autism in New Brunswick: Autism Society Canada Misrepresents Autism On Its Web Site Makeover By Hiding The Many with Autism AND Intellectual Disability

The Autism Society Canada web site was down briefly and I had hoped, notwithstanding past experience, that the ASC would have started presenting an accurate picture of autism disorders to the Canadian public and families with autism disorders. My hopes, faint as they might have been, were dashed again.  ASC, on its “new” web site ...

Facing Autism in New Brunswick: SUDEP The Global Conversation Combating The Myth That Seizures Do Not Kill

Many with autism disorders also suffer from epileptic seizures and should be aware of the risk of SUDEP, Sudden Unexpected Death in Epilepsy.  The following is a News Release about SUDEP the global conversation a joint effort of several epilepsy and SUDEP awareness ogranizations in the US, Canada and Australia:Families, researchers, clinicians and organisations unite ...

Facing Autism in New Brunswick: Joy of Conor 2014

I will not pretend, I will never pretend, that autism is just a different way of thinking.  Heather and I love our son too much to lie to the world about the nature of his autism realities, his severe autism, intellectual disability and epileptic seizures.  Like many parents of autistic children I believe it is ...

Facing Autism in New Brunswick: Conor’s 3rd Tonic Clonic (Grand Mal) Seizure

Two and a half hours ago Conor suffered his 3rd Tonic Clonic or Grand Mal seizure.  (He also suffered an episode of rhabdomyolisis, a serious adverse reaction to his previous seizure medication).  On the previous 2 seizures Conor was in a room by himself when they started, this time he was with me in the ...

Facing Autism in New Brunswick: Conor One Year Later!

Above: Conor this morning before Mom drove him to school  at the Leo Hayes High School Resource Centre.  Mom and Dad are very happy to have our Conor with us healthy and happy.   Below: One year ago Conor was in the Intensive Care Unit of the Chalmer’s Hospital for 6 days where he was ...

Facing Autism in New Brunswick: IDEA Disorder, Intellectual Disability-Epilepsy-Autism Disorder, On World Autism Awareness Day

Conor  a year ago at the local ICU where he stayed for 6 days while the ICU professionals worked to save his life and return him to us in good health after a serious adverse reaction to his seizure medications.  Other parents of children with severe autism disorders and intellectual disabilities should be made aware ...

Facing Autism in New Brunswick: Life in Conor’s "Back Yard", Fredericton’s North Riverfront Trail, in 2013

2013 was a challenging year for Conor and Dad health wise. I spent a week in acute care with some respiratory issues and Conor spent 2 weeks in hospital, including a six day stay in the ICU recovering from a life threatening adverse reaction to his seizure medication. Overall though life was good in 2013, ...

Facing Autism in New Brunswick: Severe Autism Disorders: Conor’s Autism Progress: Teeth Brushing and Tickle Shaves!

Conor Doherty sporting a big smile after a quick  tickle shave adventure with Dad this morning Many famous “autistics” were not diagnosed until they were adults and have turned their diagnoses into good career opportunities: John Elder Robison, Michelle Dawson, Ari Ne’eman and Mr. Ne’eman’s colleagues, the fellow corporate trustees of the Autistic “Self” Advocacy Network. ...

Facing Autism in New Brunswick: Excellent! Chalmers ICU Team Reaches Its Funding Goal to Purchase New Patient Monitoring Equipment!

The Chalmers Foundation has officially announced that it has met its funding goal and will soon be purchasing the patient monitoring system that is instrumental in helping the Chalmers Hospital Intensive Care Unit save many lives … including my son Conor’s for which his Mom and Dad will always be grateful: “The Chalmers Foundation shared a link. September ...

Facing Autism in New Brunswick: SFARI Highlights Serious Risk of Epilepsy for Young Children and Teens with Autism and Intellectual Disability

“Children with autism who are older than 13 years and have low intelligence are at the greatest risk of having epilepsy, says one of the largest epidemiological studies on the issue to date1. Children are typically diagnosed with epilepsy after having at least two seizures — uncontrolled surges of electrical activity in the brain. About 2 percent ...

Facing Autism in New Brunswick: Autism Breakthrough? Autism Speaks Recognizes Autism Heterogeneity!

Rethinking Autism Variation and Complexity by Lynn Waterhouse is a recent work which provides a thorough, expert and extremely well researched picture of the variation and complexity of  autism spectrum disorders. Hopefully the rest of the professional and academic autism community will read Rethinking Autism and come to grips with autism variation, complexity and heterogeneity. ...

Facing Autism in New Brunswick: Conor’s Fredericton Adventures 2013 Part I

Conor & Dad, couple of hosers enjoying the snow, eh? Conor’s Saint John River view clear day, above, not so clear below Conor helps Dad with a visit at the Chalmers Hospital Acute Care Unit Conor and Mom head out for  a stroll on the North Riverfront Trail Conor changes his mind about the strolling ...

Facing Autism in New Brunswick: Conor Goes For A Swim (and a Dive and a Slide) and Shows Terrific Progress In His Rhabdomyolysis Recovery

Conor home after a great swim adventure; making terrific progress on his recovery Conor’s autism and profound developmental delay were supplemented by two grand mal seizures between November 2012 and April 2013.  The second seizure occurred two days after he began treatment with the anti seizure medication Lamotrogine.  During the second week of treatment when ...

Facing Autism in New Brunswick: Conor’s Physiotherapy With CBC’s Terry Seguin

Conor is still recovering from Rhabdomyolysis, an adverse reaction to anti-seizure medication, Lamotrogine and needs phsyiotherapy to rebuild his damaged muscles, balance and co-ordination.  Just being home is a huge help for Conor, back home with Mom, Dad, his brother and his familiar routines.  One of those routines has been to get out of bed every ...

Facing Autism in New Brunswick: Conor Is Home From the Hospital!

Above Conor, and Mom, in the bottom pic,  on the way home. Conor’s Mom stayed at the hospital with him 24/7,  for 2 weeks Dad spelled her off at times and the nursing students also sat with Conor and gave Mom some breaks once he was moved from the Intensive Care Unit to a room ...